Jeff’s journey with Mycosis Fungoides (MF)
“It’s easy to feel overwhelmed and give up. I’m grateful to my clinical care team, family, and friends for helping me to see a path forward, that there was hope.”
See Jeff’s full story
Mycosis Fungoides (MF) is the most common form of CTCL
- Mycosis Fungoides (MF) generally affects the skin with symptoms such as rash, itchy skin, skin lesions (changes in skin color or texture), or tumors
- Research shows that most people with Mycosis Fungoides (MF) live with skin-only symptoms and have a normal life span
- In about 1 in 3 people with Mycosis Fungoides (MF), cancerous T cells may spread within skin and to other parts of the body, including the blood, lymph nodes, and other organs
Images of MF plaquea
aImages courtesy of Dr Oleg Akilov.
Blood involvement in Mycosis Fungoides (MF)
-
For some people with Mycosis Fungoides (MF), cancerous T cells may be in or spread to the blood
- You may hear your doctor call this “blood involvement”
- The number of cancerous T cells in your blood may increase if your disease worsens or if your current treatment is not right for you
- The more cancerous T cells you have in your blood, the more serious your Mycosis Fungoides (MF) may be
A blood test can measure the amount of cancerous T cells in
the blood
-
It is possible your doctor gave you a blood test as part of your Mycosis Fungoides (MF) diagnosis
- This is often a flow cytometry test
- A flow cytometry test can help identify and measure the amount of cancerous T cells in your blood, if any are present
- Your doctor can also give you this test to see if the number of cancerous T cells has increased or decreased by comparing your current results to past results
Stay ahead of your Mycosis Fungoides (MF). Talk to your doctor about receiving a blood test if you experience any new or worsening symptoms
Video Player is loading.
